Links to More Information

Alpha1 Association

The Alpha Association is a nonprofit patient advocacy group whose members live in all parts of the United States and many other countries. Its mission is to improve the quality of life of those affected by AAT deficiency by means of support, education, and research. They publish a newsletter, distribute a variety of educational materials, and generally act as a clearinghouse for information about the disease. They organize a variety of activities, including support groups and educational conferences.

Possibly most importantly, the Association provides a means for contacting others who have AAT deficiency, and who may have answers to medical and non-medical questions that are facing you.

You may visit the Association online at www.alpha1.org, or you can reach them at:

Alpha Association
8120 Penn Avenue South, Suite 549
Minneapolis, MN 55431-1326
Phone: (800) 521-3025
FAX: (952) 703-9977
Voice Message Information Line: (800) 4-alpha-1

Alpha One Foundation

The Alpha One Foundation is a not-for-profit organization dedicated to saving lives through research, early detection, and improved treatment programs for those diagnosed with AAT deficiency. They are committed to bringing this genetic disorder into the mainstream of public awareness. They sponsor the Alpha One Registry, which is expected to stimulate new research into the disease. It also sponsors the Alpha One Research Program, located in the University of Florida's Gene Therapy Center. It hosts Alphas Online, an interactive Web site that promotes the exchange of information, education, and communication among people with AAT deficiency, their families, and the professional communities.

You may visit Alphas Online at www.alphaone.org. If you prefer to write or call, you can reach the Foundation at:

Alpha One Foundation
2937 SW 27th Avenue, Suite 302
Miami, Fl 33133
Phone: (305) 567-9888
Toll-Free: (877) 2-CURE-A1 (338-7321)
FAX: (305) 567-1317
E-mail: aof@bellsouth.net

American Lung Association

The American Lung Association is a nationwide advocacy organization dedicated to the prevention and treatment of lung disease. They have chapters in all 50 states. They can be an important source of information and support, and they sponsor smoking-cessation programs in many cities.

If you wish to call or write, the American Lung Association can be reached at:

American Lung Association
1740 Broadway
New York, NY 10019-4374
Phone: (212) 315-8700
FAX: (212) 265-5642

Alpha-1 Advocacy Alliance

The Alpha-1 Advocacy Alliance is a non-profit membership organization. Alpha-1 Advocacy Alliance is to advocate for all individuals affected by Alpha-1 Antitrypsin Deficiency (Alpha-1) through programs and services of personal advocacy, education, support and public policy in order to improve all aspects of their lives. This mission will be accomplished through strengthening of volunteer community support, improving education and support services for Alpha-1 individuals, and building a network for dissemination of information to the public, health care professionals, Alpha-1 patients and their families.

You're welcome to visit Alpha-1 Advocacy Alliance athttp://www.alpha1advocacy.org/ or write or call us at:

Alpha-1 Advocacy Alliance
PO Box 202, 103 Rapidan Church Lane
Wolftown, VA 22748

(540) 948-6777 or
Toll Free 1-866-FOR-A1AA
(1-866-367-2122)
Fax # 540-948-6763
http://www.alpha1advocacy.org