 |
|
|
|
|
|
|
 |
||||||
 |
 |
 |
 |
 |
 |
 |
 |
 |
 |
||||
|
|
|||||||||||||||||||||||||
|
|
Links to More Information
The Alpha
Association is a nonprofit patient advocacy group whose members live in all
parts of the United States and many other countries. Its mission is to improve
the quality of life of those affected by AAT deficiency by means of support,
education, and research. They publish a newsletter, distribute a variety of
educational materials, and generally act as a clearinghouse for information
about the disease. They organize a variety of activities, including support
groups and educational conferences.
Possibly most importantly, the Association provides a means for contacting others who have AAT deficiency, and who may have answers to medical and non-medical questions that are facing you.
You may visit the Association online at www.alpha1.org, or you can reach them at:
Alpha-1 Association
815 Connecticut Ave., NW
Suite 1200
Washington, DC 20006-4004
Phone: (202) 887-1900
Toll-Free: (800) 521-3025
Fax (202) 887-1964
E-mail: info@alpha1.org
The Alpha One Foundation is a not-for-profit organization dedicated to saving lives through research, early detection, and improved treatment programs for those diagnosed with AAT deficiency. They are committed to bringing this genetic disorder into the mainstream of public awareness. They sponsor the Alpha One Registry, which is expected to stimulate new research into the disease. It also sponsors the Alpha One Research Program, located in the University of Florida's Gene Therapy Center. It hosts Alphas Online, an interactive Web site that promotes the exchange of information, education, and communication among people with AAT deficiency, their families, and the professional communities.
You may visit Alphas Online at www.alphaone.org. If you prefer to write or call, you can reach the Foundation at:
Alpha One Foundation
2937 SW 27th Avenue, Suite 302
Miami, Fl 33133
Phone: (305) 567-9888
Toll-Free: (877) 2-CURE-A1 (338-7321)
FAX: (305) 567-1317
E-mail: aof@bellsouth.net
The American Lung Association is a nationwide advocacy organization dedicated to the prevention and treatment of lung disease. They have chapters in all 50 states. They can be an important source of information and support, and they sponsor smoking-cessation programs in many cities.
If you wish to call or write, the American Lung Association can be reached at:
American Lung Association
1740 Broadway
New York, NY 10019-4374
Phone: (212) 315-8700
FAX: (212) 265-5642
The American Liver Foundation is a national, voluntary nonprofit organization dedicated to the prevention, treatment, and cure of hepatitis and other liver diseases through research, education and advocacy.
You may visit the American Liver Foundation online at www.liverfoundation.org. If you prefer to write or call, you can reach the Foundation at:
75 Maiden Lane
Suite 603
New York, NY 10038
800.GO.Liver (465-4837) toll-free
888.4HEP.USA (443-7872) toll-free
212.668.1000
212.483.8179 fax
info@liverfoundation.org
Alpha-1
Advocacy Alliance
The Alpha-1 Advocacy Alliance is a
non-profit membership organization. Alpha-1 Advocacy Alliance is to advocate
for all individuals affected by Alpha-1 Antitrypsin Deficiency (Alpha-1) through
programs and services of personal advocacy, education, support and public policy
in order to improve all aspects of their lives. This mission will be accomplished
through strengthening of volunteer community support, improving education and
support services for Alpha-1 individuals, and building a network for dissemination
of information to the public, health care professionals, Alpha-1 patients and their families.
You're welcome to visit Alpha-1 Advocacy Alliance athttp://www.alpha1advocacy.org/ or write or call us at:
Alpha-1 Advocacy
Alliance
PO Box 202, 103 Rapidan Church Lane
Wolftown, VA 22748
(540) 948-6777 or
Toll Free 1-866-FOR-A1AA
(1-866-367-2122)
Fax # 540-948-6763
http://www.alpha1advocacy.org
© 2003, Alpha One International Registry. All rights reserved.
